Saturday, February 14, 2015

A voice for Britain’s dementia sufferers: how our campaign has built awareness

Two months ago, Nicci Gerrard wrote about her campaign to allow more visiting time for loved ones with dementia. It provoked a huge response

Major triumphs often come from small and modest first steps and a cry from the heart. In November, barely eight weeks ago, Nicci Gerrard wrote about her father, a former GP and businessman, John Gerrard. He had suffered from dementia for several years since his mid-70s, before entering hospital in February 2014, aged 86, with leg ulcers. He was admitted, the author and journalist wrote, “strong, mobile, healthy, continent, reasonably articulate and cheerful”. Five weeks later, after an outbreak of norovirus meant his family could see him only infrequently, he emerged “skeletal, incontinent, immobile, incoherent, lost”.

In a hospital ward, if a person with dementia is “left to himself”, however good the medical care, then the fragile anchor that is embedded in what is familiar, safe and recognised is abruptly pulled up. “At his time of need,” Gerrard wrote, “we didn’t rescue him. We let him go.”

Related: My father entered hospital articulate and able. He came out a broken man

Related: Dementia: how our campaign for patient dignity in hospitals took off | Nicci Gerrard

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